Marfans! and EDS! and Loeys-Dietz Syndrome! Oh MY! Aortic root size is critical. An example of why we need our own data for this and other testing.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Marfans! and EDS! and Loeys-Dietz Syndrome! Oh MY! Aortic root size is critical. An example of why we need our own data for this and other testing.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
What do I say to my children’s current doctor to get raw data instead of just records since I do not know what that is or have never heard of it but I think it is a really good idea (Thanks for this idea!) and I really love your voice, sound and inflection, by the way!
Hello, your site is much appreciated. I have adrenal issues, with dysautonomia, POTS, and Mast Cell Disease. Very difficult finding doctors that have an understanding but finally on the right track…..I think! Looking for your articles on Mast Cells. Much more complex than I thought. Presently on Singulair, 2 Allegra 180 mg., and Pepcid 20 mg. my Tryptase is elevated at 17. C-kit negative. Now they’re going to order 24hour urine. If that’s positive they talk of putting me on Gleevec. My whole life has been disrupted. I am a nurse and have been in upper management the last 15… Read more »