Clinical trial pretesting is STARTING ON OCT 9! No charge to you! Chronic fatigue (or M.E.), Multiple Sclerosis, Rheumatoid Arthritis, chronic endometriosis, Fibromyalgia, Dysautonomia with EDS (or joint hypermobility), Chronic Lyme Disease. Limited number of patients can be accepted; by appt only. Contact us today!!!!
how do i purchase part 1 and part 2 of the driscoll theory. amazon is selling it for $999.99!!! Did you know that?
i need help. my name is patricia borntrager chico i live in goshen indiana
I would luv to have Lisa participate in any that she would qualify for; she is dx with ehlers-danlos III, Hyper adren POTS/ MCAD
I could not get the volume to work so excuse me if you answered my question
Thanks for all you do Linda
Please keep me updated on all EDS studies I would love to be a part of one I have been told I have type 3 from the genetics dept at U of M in Ann Arbor mi. By a 9/9 score by the beighton criteria they didn’t do any genetic testing but I will say I have any & everything you can imagine my pcp thinks I have MS but that has not been confirmed I’m told 2 out if 3 of my children have it I think all 3 of them do they have most similar complaints but all… Read more »
Would love to be in the study have Dysautonmia with EDS
Both POTS and NCS.
I too would like to be kept up to date with any clinical Ehlers-Danlos studies, or any medical advice for the San Diego area. I am a disabled veteran who was medically discharged for having EDS. I am currently diagnosed with type 3, but am highly convinced that the diagnoses is wrong. I have symptoms of IBS, POTS, Chronic Fatigue, Chronic Pain, and much more. I don’t even know how to go about being diagnosed with any of them, as most doctors seem COMPLETELY clueless!
Have CFIDS,CVIDS,Fibromyalgia,Reactive Arthritis,IBS,GERD,Ampullary stenosis.1984Transverse Myelitis with years of following for M.S.Chronic Pain,DDD,etc.Can you help me?
I would be interested to be in a study. I have been diagnosed with EDS type III. I have chronic fatigue, fibro,GERD, IBS, TMJ, arthritis, chronic pain, chronic headaches, myofascial pain, anemia, low blood pressure. and more.
My name is Alaina Smith I am 32 yr old mother of 2 beautiful girls n have been so chronically ill for the last 4 yrs I don’t even leave my home! I was a teacher n was always the go to person to help other out now it me people r helping. I have EDs POTS Chari Malformation hypo adernaline endometriosis intercrainal hypertension that switches between hyper n hypo. The pain is awful the changes within in my body r so scary! I have so much edema that my ring size went from a 5 to 9 I don’t… Read more »
My 20 yr. old son, Tom, was officially diagnosed with RR MS in Feb. 2012. I had always suspected a problem because of horrific nose bleeds, headaches and eye sensitivity before 2 yr.s of age. Wondering if this could be related to CCSVI? Would love to have him tested. Can he participate in the clinical study?
I’m interested in your trial. I have EDS, Osteoarthritis, Fibromyalgia, Chronic fatigue. But I live in Houston! Willing to travel, do you know a doctor in Houston who is a specialist in you field?
I have been diagnosed with fibromyalgia, chronic fatigue, and chiari malformation. I have extreme swallowing problems and edema. I would be very interested in your clinical trial.
Iissues have EDS. I have narcolepsy, Head aches, Chronic pain, very fatigued and getting harder and harder to function because I can’t seem to stop gaining weight. My back and joints are so fatigued and painful. Is there any connections with the weight. My symptoms are so many and I really would like to be apart of any study. I seem to have pots issues and autonomic dysfunctions as well. There are many relatives in my family that also have EDS. we are 3 generations deep. One thing I have noticed is the girls in our family that have had… Read more »
My granddaughter has cp and eds. We are just starting the journey with the eds. She is three years old. We are going to have all my grandchildren and children tested to see if they have this disorder. Her biological great-uncle just had surgery because his aorta ripped.
My oldest daughter has been diagnosed with MS and I am pretty sure she has EDS also. Please help us in any way that you can. We live in Ohio.
What is the status of your trial involving gastric issues? My daughter, 20, suffers from all of the symptoms you mentioned and it has made her life very difficult. Any info you could provide would be great. Thanks.
I have EDS HYPERMIBILITY, dyatonomia , a serious case if the sleepies ( I’ve been sleeping for almost three days straight now, constipation, sweating from mostly head neck, double vision from childhood pretty much corrected by prisms, balance issues, elevated liver enzymes (no I don’t drink alcohol or take medications with tylen, stomach bloating ( having a cominiscipy in two weeks) c
I can’t find a doctor to treat all my symptoms but um willing to help you Dr Diana.
I HAVE OSTEOARTHRITIS, DEGENERATIVE DISC DISEASE,CHRONIC FATIGUE, ACUTE CHRONIC MIGRAINE, MOTION SICKNESS, EDS.
I have HEDS and am trying to get referred to a geneticist for vascular. My Mom had an aneurism on her aorta the size of an orange. Many people in my family have varying heart and hypermobility issues.
I have Dysautonomia, EDS, POTS – I have suffered from migraines for 30 years although I was only diagnosed 10 years ago. I just found you and have so much to learn, but I immediately went to my Doc and asked to be put on Diaxom. I just went through my cycle and did NOT get 2 migraines one at the start and one at the end . It was the first time ever. Does this mean for certain I am leaking fluid? I am certainly willing and hoping to be a test candidate. I was a dancer and performer… Read more »
Hello, My name is Rebecca. I am 35 and have been dealing with illness for 12 years. I have been diagnosed with numerous illnesses,and am trying to find a common link or underlying cause to my issues. At 23 I was diagnosed with Fibromyalgia and Hypothyroid, at 29 I was diagnosed with endometriosis,adenomiosis,and interstitial cystitis. At 30 I was diagnosed with pancreatitis and gastroparesis. Most recently, I have been diagnosed with pelvic congestion,and had a left ovarian vein embolization for my enlarged pelvic veins. I also suffer from many spinal issues (herniations,scoliosis,arthritis,etc.) and have had brain MRIs show white matter… Read more »
Our daughter, Marlo has CRPS. We have consulted with Dr Pradeep Chopra and he agrees with my summation that she also has EDS, Dysautonomia, and Mast Cell Activation. We need help! We aren’t getting the interventions she needs.
I would be interested in participating EDS hypermobility and probabbbly POTS
Please send form to my address merri prchlik 5011 n irish davison michigan 48423 i have many symptoms and ttt soon ty i will send it right back!
I am very interested in participating in one of your clinical trials. I would greatly appreciate any information you can provide in regard to clinical trials you maybe conducting.
Very good video. She explained her methodology very clearly. As a man who has no clue about psychology i understood what shes trying to do and her plans on curing people.