Dr. Diana discusses a couple of the rarer collagen disorders that may be underdiagnosed. She discusses Stickler syndrome, Marshall syndrome, the eye effects involved and loss of hearing
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Dr. Diana discusses a couple of the rarer collagen disorders that may be underdiagnosed. She discusses Stickler syndrome, Marshall syndrome, the eye effects involved and loss of hearing
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
Thanks Dr. Diana.
I’m certain I have some sort of hypermobility syndrome with frequent dislocations that have become less frequent as I have gotten older, but with joint pain- especially in my legs and disc issues in my neck and lower back. My eye dr suspects Sjogrens (with corneal abrasions from dry eye- restasis helped, constipation, frequent vaginosis, sinus infections, dry mouth, and dry ears). I have had postural orthostatic hypotension along with loss of sweating on arms and legs and erratic blood pressure since my late 30s and I am now 55 and have started having the same dizzy spells while sitting… Read more »
Thank you Dr. Diana for your video on recognizing that Stickler syndrome is a common but rarely diagnosed connective tissue disorder. Our support group (www.sticklers.org/) has been getting the word out since 1997 and your acknoledgement will help educate the medical field and the public. Kudos to you! Rick
Just wanted to add it could be Nail Patella Syndrome too! It really makes sense for some of us spinal Zebras!