Dr. Diana explains what is involved in the diagnosis of dysautonomia. What is a “subclinical” diagnosis? Why a heart rate variability test is not enough! A must see for all spoonies – EDS with dysautonomia, POTS, MS, chronic fatigue, chronic Lyme, fibromyalgia, RA and other autoimmune and neurodegenerative diseases. Articles at www.Prettyill.com
Hi Dr. Diana
I registered for the website today. I have not been tested for dysautonomia yet but I already suspect it would be positive on all tests. Thank for the testing advice.
I was wondering if you have a video on muscle atrophy
neuromuscler neuromusclar
I am sorry I was having trouble typing but I know you understand. 🙂
Great video – you are so funny Dr. Diana! I’m not sure if you explained it and I missed it or not, but what is the connection in DXing POTS and sweating? Also, my POTS DX from both my Cardio and Neuro was without any of those extra special tests. Yes, they went by heart rate and my fainting, and the 7 bags of IV fluid it took to get a normal heart rate (though it gave me a tremendous headache!). My regular doctor, naturopath, knew I had many more autonomic disorder symptoms and he ended up doing a tilt… Read more »
Having Tilt Table Test today for Tachycardia despite meds. As I’m understanding I must get to underlying cause. I discovered last year I have Chiari, and many symptoms of EDS but haven’t seen a specialist on that yet. Your videos have been so informative
Hi Diana, Really enjoying your site. I was struck down with chronic illness a year ago and being a molecular biologist by training have like you jumped into the medical literature to find answers. I started actually seeing a correlation of my symptoms with histamine. I read about POTS 6 months before a doctor picked up a standing heart rate change from 80 to 120 bpm. I had many symptoms but went taking my pulse it often had only gone up 25 bp so shelved it and move on looking in mast cell activation. When this doctor said to me… Read more »
I again. I forgot to say I have GERD, sinusitis, endometriosis, flushing, itching, and POTS. I also experience a body shutdown when I have been upright with POTS. This usually happens every 3 days. I can’t do anything. My body gets really cold. I can sit by the fire that is 40 degree centigrade and my feet still radiate cold! My body twitches and buzzes. First this was very scary but now I see it as my body resetting itself. Once this stops I’m can be upright again. Is this common for dysautonomia? And the sentence about the tilt test… Read more »
Dr Diana,
I have had the tilt table test and it was normal.. yet I know I have dysautonomia.. or at least the symptoms. I’ve been Dx EDS classical 20 years ago.. all three of my adult daughters have it as well.. My question is there a different set of “markers” on labs, tests, etc for EDS patients vs non-EDs patients?? Thanks for any info you can provide and keep up the good work..
I can’t find your video of how you beat Hyperadernergic POTS. I have been diagnosed with this along with Ehlers-Danlos Syndrome Hypermobility Typr and Mast Cell Activation Syndrome. Both of my daughters also have Ehlers-Danlos and POTS or Cardioinhibitory Vasodepressor Syncope. We all three have several vitamin deficienies. We have had a hard time finding a dcotor who knows how to treat the conditions we have. It seems as if they want to treat each symptom and don’t ever even touch the root of the problem. We live in the Nashville area and we were diagnosed at Vanderbilt. My oldest… Read more »
Not diagnosed with anything but osteop., but had to get up slow whole life , some foods make it worse, trying to track down when feel better posible reasons!!! Is pots related to slow resting , laying down heart rate? If sleep on back, HR – 43-53, rt side is 57-9, wonder why makes such a difference.
Would be so nice to wake up refreshed.