This is the hardest question I receive from patients. How can I find a doctor who understands my condition? Which doctors are following “The Driscoll Theory”? Let’s share, shall we?
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
This is the hardest question I receive from patients. How can I find a doctor who understands my condition? Which doctors are following “The Driscoll Theory”? Let’s share, shall we?
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
So glad you posted this for folks! (I’m having some brain fog today, so bear with me if my post is botched here and there :). It took me about 8 years to find a truly loving, caring, open minded, thinking outside of the box doctor. He is an integrative doctor, who treats the body and mind as a whole. I was at a very dark place before I found Dr. Reid Blackwelder in my area. My doc at that time would not accept the diagnosis from Vanderbilt of ‘Autonomic Dysfunction’ over 2 years ago, & I could tell horror… Read more »
I forgot a tidbit. In looking for a doctor, when I was searching so desperately for a few years, I basically asked around for a doctor who either takes in rare cases or one who takes on chronically ill patients. Just a thought for those in the search process. Also, it is so very helpful to find a therapist, or psychologist who specializes in chronically ill patients. I have found that is a huge necessity in this disease, as ones who only deal with the chronically ill, can teach & suggest coping methods and much more. So, if you don’t… Read more »
Anybody tried Quercitin, which is available at health food stores and 1g/day is, according to one study, more effective in mast cell stabilization than cromolyn.
Hi Doctor Diana, first of all I would like to thank you so much for creating this site. Like many other patients I came to an “Aha” moment when I was researching loose painful joints. I have been treated for arthritis Crohn’s disease and several other complications. I live in a rural area, and I’m having a hard time trying to find a doctor that
(sorry I accidentally pressed the share button)
…doctor that is familiar with EDS. I have several doctors that I deal with and so far in the San Antonio area my doctors are not familiar with EDS. I am currently on disability because of my Crohn’s disease and arthritis and unfortunately dealing with Medicare you usually don’t get answers as quick as we wish. If anyone in the New Braunfels, San Antonio, Austin area knows of a physician that can possibly help me. I would be so grateful. Thank you, Christina
I purchased your e-book, “Your Eyes & EDS.” I have not been formally diagnosed but believe EDS is causing my eye problems. How do I get the FREE WORKSHEET mentioned in the book to give to my primary care doctor? I would also like to know more about MS prevention to share with her. Thank you.
I purchased your e-book, “Your Eyes & EDS.” I have not been formerly diagnosed with EDS but believe my eye problems, plus, are Ehlers-Danlos related. How do I get the FREE WORKSHEET from the e-book to show to my primary care? I have MS and Parkinson symptoms too. Do you have any literature about preventing MS? Thanks for your help.
I want to print out the Driscoll Theory but I can’t find it in the articles and handouts where is it ?