Dr. Diana offers a wallet card for MCAS (Mast Cell Activation) sufferers. She discusses what happened to her and why she carries this card with her. Important for most EDS/POTS and MS patients.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Dr. Diana offers a wallet card for MCAS (Mast Cell Activation) sufferers. She discusses what happened to her and why she carries this card with her. Important for most EDS/POTS and MS patients.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
Thank you! So helpful!
I’ve never heard a medical professional describe my symptoms and experiences in almost the exact same words I use! Your illness and your courageous long journey to find solutions is a gift to many of us. How may I order the mast cell wallet card?
Hi Dr. Dianna, First, thank you so much for all you do to help others. I’ve been listening to some of your many wonderful video’s and one particularly struck home. I have several connective tissue genes that have popped up on my testing, and my kids have issues also. My dd who is 10 has had similar issues with the bowel shutting down even on her mirilax and everytime this has happened, it has been after having foods that have too many corn derived ingredients in them. She has also had the white chalky stools you have talked about that… Read more »
I have looked on your site MCAS@POSTCare.com, but don’t see how I can order the MCAS wallet card. Could you please help? Thank you!
Charlene
appreciate your determination, your inductive and deductive skills.
your expressiveness and your drive for solutions….
while i am not a member of your profession…i too have been need based and highly motivated to uncover the core imbalance driving effects of an extreme birth injury which literally impacted my entire body thru compression of the vagus nerve and set off a cascade of symptoms that stunningly parallel much of syndromes you experience…
i am grateful indeed to have come across your generous work
Thank you for all you have done to advance the knowledge and new treatment modalities for EDS/POTS/MCAS and MS patients. Can you please send me a wallet card. I have been pretty ill with dysautonomia, POTS, and MCAS. I avoid ER and the hospital as much as possible. Your site has been immensely helpful. All the physicians that I have seen have admittedly no knowledge, or limited knowledge. I am now being referred to an immunologist at Indiana University. I am hoping for an accurate look into this for a possible resolve, or at least better treatment. If not for… Read more »
Please send me a card:
Brenda Merkel
711 Waring Welfare Road
Comfort,Texas 78013
I’ve only recently been diagnosed, so your blog and videos are invaluable to me and others like me (as I’m sure you know). Thank you for sharing such intimate details and for all the work you do. My thoughts and prayers are with you and your family. I will be emailing for a card and I linked to your site from my blog, http://theemptynesthousewife.com if you don’t mind. Thanks again, Dr. Diana!!
I have experienced something similar but not as extreme. Thank you so much for sharing your experience and providing the wallet card.
Dianna, I am so sorry that you went through such horrible illness. I am glad to see you looking so well in the video. I wish you never to go back to that kind of experience again. I have not had your hospital experience, but have had the flushing for 6 years. It is awful! I flush everytime I lay down within a minute. I flush during the day and evening. Sometimes rolling flushing where it hits a peak, settles and then starts right back up again and can continue for hours in the evening. The flushing comes with a… Read more »
Thank you for all you and your family do to help each and every one of us. You are delightful dispite being pretty ill. I hope to be in contact more in these next few months as I am attempting to help Dr. Francomano with her new study coming up. I will send you a link requesting a wallet card (if they are still available) and let you know about the huge delema going on in my life. Its a doozy of a mess on top of all of my other medical issues. Do you mind if I share the… Read more »
I am so glad to have found you, and listened to you and your information. I was diagnosed with Systemic Mastocytosis, in my forties. Have also been diagnosed with dysautonomia, lupus, interstitial cystitis. Have had pulmonary embolism, and have end stage liver disease due to hepatitis C. Have been very most of my life. Happy to know that I am not alone. Thank you so much.
You are my life saver, I have been so sick for 10 years with exactly the same problems as you have, seen 17 doctors with no diagnose and no solutions I will read up as much as I can to learn from you I am in Australia in Brisbane is there any doctors here I wonder that can help me.You are my blessing
8841 Severn Lane
Elk Grove, CA. 95624
If the MCAS cards are still available, I’d love to have one. Also, I’d love to share my story with Dr. Driscoll. I’ve been through 47 years of misdiagnoses and well-intended treatments that have worsened the effects of MCAS and EDS, and very recently, nearly took my life. The information Dr. Driscoll has on the Internet was instrumental in helping me save my own life! I’d like to express my gratitude. Thank you!
Can you help me regarding Telebrix? I am scheduled for a virtual colonoscopy and they want me to take this. It looks very scary, and if you have any info or alternatives I would really appreciate your help!
Thank you!
I’m so happy you survived such a traumatic event! I would like a card for my 17 y/o daughter who has MCAS. Thank you
Please send a card
5624 Stonefield Rd
Slinger, WI 53086