Dr. Diana, as patient, explains a few reasons why hyperadrenergic POTS patients suffer so much. POTS/dysautonomia involves many “invisible” systems that can be difficult to explain to doctors and loved ones. This video will help explain what is happening and what can be done to help the patient and those who care for them.
Great vid, thanks for sharing, and caring enough to make it easier for some ppl to understand what might be going on with their, or a loved one’s, specific version of POTS.
Hi Dr. Diana,
I hope this finds you doing well. What all has helped you in your diagnosis of HyperPots? Are you functional?
I can’t say this for sure, but I was diagnosed with dysaunomia, have mast cell symptoms. Clothing store can’t really try on clothes, and can skin write at all times. Iv been following the website. And have been taking antihistamines. It’s too early to tell just yet if this is the answer. But just wanna throw out the possibility of a copper deficency. My copper was very low serum 59(range 70-150)but ceruplasmin was normal and I had no free copper!! So it’s all being used and highly needed. Copper deficiency cause collagen problems as many in the nutritional balancing field… Read more »
Hi my name is Kristin OMG first of all I want to say THAnK YOu your videos are amazing and so helpful. I find it funny that I’m watching this video in bed at 1 am when you mentioned insomnia!!! I commented on a video you had on youtube some time back about possible hypermobility. I finally got a diagnosis for that and am now trying to find someone who specializes in Dysautonomia. I have so many symptoms : insomnia day time fatigue migraines pain joint pain diarrhea almost constant nausea with occasional vomiting very cold feet passing out vision… Read more »
I have dysattonomia, however it is neurally mediated hypotension, not POTS. Please help differentiate.
I was with you all the way, symptom wise, until you mentioned you were “slightly acidic” and needed to get back to “being more alkaline”. Um, what? Are you saying you have organ failure?
My dear young friend has POTS. We also share a dx of Lyme Disease with co-infections. I was researching an organism which I have called Candidatus Protomyxzoa Rheumatica. I came across your website accidentally. I am so thankful for your education on POTS. My gracious, I am an R.N. and have never had an explanation of this so clearly. As you, I have an invisible disease. Living in Phx, AZ near many retirement communities I have run across numerous suffering older folks with invisible diseases or syndromes. They don’t want to be labeled as “handicapped”even though their condition requires them… Read more »
Thank you so much for the video! I have POTS, joint hypermobility, and histamine intolerance. I also have tardive akathisia/ extrapyramidial syndrome for 7 years that in my opinion is caused directly by the POTS. A literature review turns up nothing. In this video do you mean you have a feeling similar to subjective akathisia or do you have akathisia? Could you describe more what is going on?
Thank you for the ❤️heartfelt❤️explanations❤️
You truly are shining ✨⭐️