This patient with invisible illness describes how most of us feel when we visit our doctors. Be sure to watch to the end, where he gives a shout-out to Dr. Diana! www.Prettyill.com Dysautonomia, EDS, Fibromyalgia, Chronic Lyme, Chronic Fatigue Syndrome, M.E. and numerous other “invisible illnesses” are frustrating for most doctors, and force patients to try to flounder for themselves. This needs to change quickly, because every day, every hour, these patients are suffering.
I know I can relate to this, wish I had the nerve to talk back to the doctors. How many of us have had this happen??? Over and over and over… :0)
So tired of hearing this, mostly specialist. My reg. doc is trying so hard To help lots of tests no answers. Then I got genetic test shows loss and gain in same gene and other abnormal genes,but still no diagnosis! Now they want to do test cost 10,000 can’t even afford 10$ I really believe I have a form of eds,after lots of research I’ve done! I am permanently disabled and have many problems, severe pain being the top of the list. In less than 2-3 yrs. time, after 20yrs. Of hard Work and caring for my family,going to see… Read more »