POTS, one aspect of dysautonomia is GONE for me. Working with the root of the problem (as opposed to treating the symptoms via salt-loading, etc) may be the key for many of us with dysautonomia (EDS, chronic fatigue, fibromyalgia, M.S., chronic Lyme, etc). Setting up clinical trials now. If interested, please send your contact information to “volunteers@Prettyill.com”. If you’d like to help, please let me know! 🙂
Your medical issues sound so much like what my son has been experiencing. I want to get an upright mri. We do not have one close to us. He has had flat mri and it does not show any cause. A pet scan did show hypoprofusion to cerebellum and mesial temporal area. He has intracranial hypertension. After listening to your videos, we checked his heart rate supine and then standing and his shot up too! I had not heard of eds. Now i know this may explain family members knees and jaws easily dislocating. My son is 11 years old… Read more »
Diana, can you please summarize the step-by-step treatments you used to recover from Hyperadrenergic POTS? And also which type of specialist you found to be MOST helpful & knowledgeable about diagnosing & treating HPOTS (i.e. neurologist, cardiologist, electrophysiologist, endocrinologist, etc…), not just the tachycardia but helping to remedy all your HPOTS symptoms.
Great video! So glad your POTS is better!
maybe i missed something but i do not understand what is being trialled?
Would love some help with my Ehlers. I havelost my life.
Many thanks for revealing useful information.It’s really goood.