Dr. Diana, as Patient, continues to explain what it feels like to have Ehlers-Danlos, dysautonomia, CCSVI and some symptoms of MS. She discusses her progression over the last 7 years.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Dr. Diana, as Patient, continues to explain what it feels like to have Ehlers-Danlos, dysautonomia, CCSVI and some symptoms of MS. She discusses her progression over the last 7 years.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
Dear Doc I was just released from the hospital yesterday after a week long battery of tests. I also have classical EDS. I was diagnosised at Vanderbilt in 2004. Since moving to Texas I have found no EDS doctor. Call me lazy. I spoke to your husband a year ago after I heard about you. I have been instructed by the hospital internal medicine doctor to make an appointment in the next week at your eye clinic to get an exam for eye disturbances. I often feel drunk without drinking. I get nausa and the blackout if you can call… Read more »
Your website is great!!! I appreciate your time and efforts.
Hi Tamara,
Wow, you are still able to work. I know what an incredible effort that takes. You rock. I think we’re making some progress on the exhaustion. (‘fatigue’, my arse). Hang in and thanks for watching! Big hug,
Hi Michelle,
Thank you, Sweetie, for your encouraging words. They keep me going (along with my 17 meds and supplements. ha).
I’m so glad the site helps you!
Yes, yes, yes. It’s bizarre to hear so many of my symptoms (many of which I have never seen in EDS information resources) be described by you. I thought that hearing your pulse in your ears was normal (when my heart is racing it’s so loud I can’t focus on anything else)…and seeing/feeling the pulse in your abdomen… I have so many symptoms of classic type, but I have been in pain daily, for as long as I can remember, so what you say about hypermobility type really resonates. Can you believe I haven’t been diagnosed? ugh! I wanted to… Read more »