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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Aortic root size — our frightening experience!

Marfans! and EDS! and Loeys-Dietz Syndrome! Oh MY! Aortic root size is critical. An example of why we need our own data for this and other testing. … [Read more...] about Aortic root size — our frightening experience!

Mast cell disorders — New Protocol (updated)

Dr. Diana discusses the new protocol for diagnosing mast cell activation syndrome (MCAS), and asks us to consider -- could other histamine producers be to blame? … [Read more...] about Mast cell disorders — New Protocol (updated)

Diamox and Alkalinity (updated)

Have IIH or hydrocephalus and need help with Diamox? Staying alkaline helps -- here's how. … [Read more...] about Diamox and Alkalinity (updated)

Gastrocrom costs HOW MUCH?! (updated)

Need help with mast cells (MCAS) and POTS? Can't afford Gastrocrom? Help is here! … [Read more...] about Gastrocrom costs HOW MUCH?! (updated)

Let's talk about Diamox! updated

Diamox can be used to lower intracranial pressure in folks with IIH and hydrocephalus allowing many to avoid brain shunts (and many patients with EDS can avoid neck fusions and Chiari surgery! The use of Diamox can be tricky -- let's chat about that! … [Read more...] about Let's talk about Diamox! updated

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This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

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What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020