Part 2 of The Driscoll Theory as to the cause of POTS in Ehlers-Danlos Syndrome is now available! The results of Dr. Diana Driscoll’s research, a clinical trial and retrospective analysis are revealed. Dr. Diana explains how hydrocephalus, mast cells, inflammatory cytokines and CCSVI all relate to one another and cause the constellation of symptoms that can progress over time. MUST WATCH!
Thank you so much for posting this and making the download available for free at Amazon! Sorry you have been so sick! You are amazing, getting so much done despite your own health problems! Can’t wait to hear more about the registry!
Thank you so much for this. It’s a wonderful book and is exactly what I am looking for. Do you recommend having the DR purchase it or is there a way for us to print it once we buy it?
Thankyou Dr Diana for making part 2 available for free. I downloaded and read yesterday (though wish there were a print function so I could print a copy for a couple of doctors I see). I love that it has not only “this is what the issues are”, but also a section on treating. (FYI, I am certainly behind the ball… I was diagnosed with chronic fatigue in 1998, and only after having an OT assessment done on my daughter last year, finding that she was “hypermobile”, did I realise that this is what has been causing my “chronic fatigue”.… Read more »
Many thanks to you Dr.D. for your commitment to Excellence, Your passion to find the answers and your continuous research for the benefit of millions who struggle daily with limitations that most people could not carry with such grace as you do. I am certain I speak for many who cannot find the words to say.. YOU ARE A HERO!
Hi ourfullhouse! Thank you so much — I can hardly wait to hear what you think. And thank you for your concern. Remember, if I didn’t go through this condition and all of the fallout illnesses, I doubt I could have EVER figured this out. Kind of a mixed blessing… I’ll get news to you about the registry soon! Big hug, Diana
Hi Angela, I think your doctors will love it, actually. With over 100 references and results of two studies, it should be right up their alley! I’ll be getting out the hard copy soon, with both Parts 1 and 2, a special section about your eyes and EDS, and a personal section with some photos, etc. Meanwhile, you can “gift” Part 2 to your doctors for a mere 99 cents! How great is that? “)
Hi indianlilli, You are so welcome! I hate to hear you are part of “the club”, but it’s a great time to figure that out, I think. Hope abounds, my friend. Because I have “donated my body to science while still using it”, I try everything on myself first, then my kids! 🙂 We have some great things coming. Hang in, OK? Big hug, Diana
Oh, Barbara, you are so kind. You and all patients suffering with this are MY heroes. You keep me going, and your gratitude makes all of the work worthwhile. Don’t go too far, OK? I am expediting this registry and I humbly believe the results will FINALLY show the world just how sick we are! Most doctors weren’t looking in the right place, and science was just evolving enough for me to pick up on this. So it’s the combination of scientific progress and “serendipitous” findings (after thousands of hours of research, and thousands of hours of comparing notes with… Read more »
For everyone who has asked, Part 2 will stay at 99 cents for 2-3 weeks, then it will go to some sort of a “normal price”. A few top researchers are joining me in my research and clinical trials now (I am honored). They wanted us to keep control of where Part 2 went, and that all chapters stayed together. Offering it through Amazon was my compromise to them. Hard copy soon, and an AUDIO book, for those of us who have trouble reading all of this (been there!). Please stay tuned! 🙂 Diana
Just wanted to let you know that we just got back from Stryder’s Neurology appointment and the DR. knew of you and your theory and said that he is very intrigued and believes you are on the right track with everything. It was so intriguing and interesting. The word is getting out and even in our tiny little town.
Hi Anj, WOW! A neurologist in a small(ish) town knows of The Driscoll Theory?! Thanks to wonderful people like you, we’re getting out the word! That is wonderful. Thank you so much for sharing that, my friend. Big hug,
Wondering when your hard copy is going to be available? I received some gift cards for Amazon and would love to use the $ on your book- on that note, do you know the approximate price?
Hi Anj, the final proof went to Amazon yesterday! It takes them about 2 weeks, I believe. If we stay with black and white, it should be below $20. My compromise is to put all of the images in color on the website, so people can see color, too, if they’d like. The book has Part 1, revised, Part 2, an eye chapter and a personal section. I hope it helps a BUNCH!! 🙂
This is by far the most fascinating website that I have found regarding POTS. I believe that a mass mailer about your book/website should be sent out to ALL doctors! (I’d hate to miss one!) Then I’d like to go back to every doctor that said it was all in my head and every psychiatrist they sent me to and ask for a refund! You are an amazing, intelligent and passionate woman, doctor, patient who truly cares to find a cause for POTS and a cure. We have all been blessed with an angel!
Thank you so much, Marie O! Your thoughts and heart-felt thoughts mean so much to me. I, too, was sent through the “doctor-go-round”. When one of the POTS researchers told me his hypothesis — “we are normal, healthy people who are more aware of our bodies”, I knew I had to go on the quest alone. I am so grateful for those of you on the quest with me. Big hug, Diana
I had to tell you how much your theory has helped my son. He was retching 20-30 times per day. He had been on several different proton pump inhibitors with no help. I switched him the pepcid 20 mg. twice daily and he has not retched one time since beginning the pepcid. I have also added the zyrtec. We saw his doctor today and HE mentioned the Driscoll Theory and talked about adding Diamox.
Thanks so much.
Hi LaRue, Thank you so much for sharing your son’s experience so far. You know that my kids are also affected, right? From one Mom to another, I know how incredibly difficult it is to watch our kids suffer, especially when we have no answers. I rejoice with you, hearing that your son is already improving. PLEASE let us know how he does with Diamox, OK? And if you can share your doctor’s name on our forum (under “good doctors”), we would all be grateful. I’m SO GLAD word is spreading! And I haven’t even finished the clinical trials yet!… Read more »