If you are following The Driscoll Theory, you know how hard it can be to remain alkaline. This video may help!
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
If you are following The Driscoll Theory, you know how hard it can be to remain alkaline. This video may help!
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
Very helpful! Thank you Dr. Diana!
Thank you so much for all this information!! I’m sitting here taking notes down as im watching this 🙂 I have been trying to get alkaline for a while now, before I knew about the diamox. One thing I might mention, is that I drink chlorophyll daily, as it has many, many good qualities, and is great help in obtaining/balancing alkalinity in the body. I never thought of the baking soda capsules, so i wrote that down. Shoulder…. absolutely… it’s always my left, ranging from the top of the skull tracing all the way down the side of face, neck,… Read more »
Its very helpful to everyone. Really Thanks alot
Thank you so much, ourfullhouse! We are in this together, and trying to stay alkaline is TOUGH, which is why sharing over the internet is so important. I had a couple of BAD surges in ICP (secondary to cytokines from my frozen shoulder) and you would not BELIEVE how many things I was grabbing for help. Someday, we will look back on this and laugh. Someday, we’ll have better alternatives. Meanwhile, duct tape, anyone? Big hug, Diana
Thanks, Tennille,
You rock. YES! Chlorophyll is alkaline and it may help with our magnesium, too (research to come). I’ll order some today and put some liquid Chlorophyll in the “Store” at this website (it goes to Amazon). Thank you for your wonderful suggestion and your help. Big hug, 🙂 Diana
You’re welcome, Jaydensmilth! Thank you for commenting! I don’t believe I’ve seen those mouse ears here before. Welcome! 🙂 Diana
To get away from sugars (and salt) is hard. They are hidden in most packaged grain products; however, I can readily suggest looking up elanaspantry.com – It is a gluten-free and sugar-less recipe site. Almonds (as mentioned) are mildly alkaline, and the ‘flour’ in these recipes is typically almond flour or sometimes coconut flour. The outcomes are lovely, and I use the Bread 2.0 recipe on a weekly basis for my family and I (adding vanilla and cranberries, omitting agave). Realising that I have E-DS has really pulled me up on some of the lifestyle habits that I have allowed…Sweet… Read more »
Dear Dr.DianaI am 32 and diagnosed with EDS III rceently. I am very desperate most of time because my body starts to fall apart. I am pregnant with my first baby but i am afraid not be able to bring him up.I am questionning my diagnose, I can’ t believe I have it because my relatives does not have any joint disorder at all and because all my childhood till age 15-17 I had extreemly strong joints (I could run for 10 miles, work-out in fitness, do weight-lifting because I was rowing). Most of things started after age 15-16 when… Read more »
My scalp gets big fluid lumps that swell and eventually burst and a very sticky fluid leaks out, usually over night. Very painful. I am very ill with POTS, Dysautonomia and have lost so much this last year. I have had to quit doing most of my life. Strongly suspect of Vascular EDS. Mom died at 58. She blew-up. Bled-out. I just turned 60. I have taken much better care of my body. I do have the struggle with suicidal ideation and my balance is becoming a joke. My entire family is so horrified, I may as well have the… Read more »
i just found you through ccsvi in multiple sclerosis on FB. I have MS, frozen shoulder, white tongue and my alternative MD says i have lyme because i had a faint band on the IgeneX western blot lyme test. he put me on tyndimax but that treats vaginitis! and when i take it my white tongue gets MUCH worse, so i stopped taking it. when i do hyperbaric oxygen therapy at 1.5 A i start to notice improvements. After doing about 15 90 min sessions my walking starts to improve. i keep telling myself to do 40 sessions and then… Read more »
I new I seen this awhile ago but I needed to reread it to confirm if baking soda works and maybe explaine why I have mild symptoms returning. I check my blood work from last month my CO2 was 21 and also after that blood work was done my diamox went from 500mg a day to 1000mg a day and I now no my CO2 needs to be at 22 not 21 this answered some things I’ve been pondering on the past 4-6 wks..
Oh, Jrl, it sounds like you may be on Diamox Sequels. Those are not very effective for this condition. You really need the regular, cheap Diamox tablets. Likely, you’ll be able to go WAY down on your dose, making alkalinity less of an issue… 😉