NOTICE: Conference postponed until July 2013. This is a great group of folks who are already raising money for EDS research. I'll be speaking, along with an impressive list of other EDS specialists. Be sure to go to CEDSA.org to join -- it's a free membership with lots of benefits! … [Read more...] about CEDSA.org Conference Coming Up!
This is the hardest question I receive from patients. How can I find a doctor who understands my condition? Which doctors are following "The Driscoll Theory"? Let's share, shall we? … [Read more...] about Finding a DOCTOR!
E-Patient Dave gives an entertaining talk about how social media -- used at his doctor's suggestion -- saved his life. Whether it is The Driscoll Theory that pertains to you, or not, this will motivate you to remain captain of your ship, and to work with doctors who are willing to be partners in your care! LOVE THIS!! … [Read more...] about E-patient Dave on TED!
Dr. Diana, as patient, shares with you her holiday spoonie tricks for survival! … [Read more...] about Spoonie Holidays
Dr. Diana shows you her Ehlers-Danlos (EDS) dog! … [Read more...] about Meet our EDS Dog!