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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Geographic tongue and EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Geographic tongue and EDS › Reply To: Geographic tongue and EDS

August 20, 2013 at 8:17 am #4146
Jrl_3327
Participant

Yes I agree I have been told I have stumped them or I’m too complicated of a case basically they don’t want to be bothered. My pcp is very educated but was way to busy to see the signs. Ive been left to do all the research myself but at least now he listens and the sad thing is he does know all this medical stuff he just doesn’t put it together until I give him a diagnosis to at least rule out then he’s like your right that makes since and he will then test me for what it might or might not be. My kids doc I now have on bored but it all took a few years to get them to listen. The specialist really get to me when they don’t want to be bothered, its like why did you become a specialist if your not determind to help “complicated” patients. My doc now wants to right a med book on me because I such an “odd case”. I told him I’m not done yet when I have a few more answers then we can talk. I’ve just learned if the dr isn’t open minded its not the dr/specialist for me. I am pretty much stable at the moment but it all starts back over with my 3 children. A very long journey a stressful one that is! Thanks to Dr Dianna and all her information if it wasn’t for that idk if I would have all the answers I have!!:)

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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