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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Symptom

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Symptom › Reply To: Symptom

September 4, 2012 at 8:45 am #2872
Give My Daughter the Shot!
Participant

Hi Brent,

I’ve not experienced the same delineation as you describe since I’ve not ‘bounced back’ but continued on a notable decline. I have, however, experienced your symptoms along the way. I remember thinking (for more than one ‘red flag symptom’), ‘that’s impossible, I’m not diabetic’. Yes, the excessive urination confused the heck out of me. I remember thinking that it was strange since I hadn’t taken in nearly the fluids to have to ‘go’ the way I was. At the time, I chalked it up to – well, that’s ok, at least I’m hydrated. Yes, I’ve nearly killed myself trying to ‘blow off’ these horrific issues but they’ve overtaken my life so horribly that I now do myself more harm than good to attempt the delusional way out.

I am perpetually exhausted almost to death for years now. I am not sure how that correlates with the excessive urination. I don’t experience the outrageous amount of output every day. The exhaustion is suffocating. It isn’t every day, however, that I roll off the couch and onto the floor because I just cannot sit up anymore. I did that right in front of my dad (which I would never do) because I didn’t even have the energy to ask him to move off the couch because I desperately needed to not have to sit up anymore. I guess that since this doesn’t happen everyday, maybe I am worse with exhaustion sometimes?? It’s all a gasping, panting, staggering, brain foggy blur.

I’m going to pay closer attention now that you’ve mentioned, to see if there is comorbidity. I had recently noticed that my bloodwork has been, repetitively, far off of normal for at least the last couple of years (I don’t have labs from further back than that) and nobody ever told me. All red blood cell counts have been off – even way off. Same with eosinophils and other white blood cells. Sometimes nearly 3 times what the max level is supposed to be. I am only a lay person who isn’t a big fan of medical stuff – always responsibly taken proper medical/dental care of myself but never interested in blood, guts, veins, etc. Just live and let live for me – thanks. Anyway, do you think it has something to do with liver/kidney function? Some of my bloodwork (not consistently) appears to indicate that there may be a problem for me in that arena. Oh, now I live in a diff area where the medical care is, overall, far far worse than any nightmare I could ever have. I don’t see myself as being able to ‘solve this mystery’ but do appreciate your sharing it.

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