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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Diamox question

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Diamox question › Reply To: Diamox question

January 10, 2014 at 4:32 pm #4722
Barbara
Participant

Hi,
I looked at a post by Dr Diana,

http://prettyill.com/forums/viewthread/441/#2463

where she says
“I think it is entirely possible that Diamox may not agree with folks who can’t handle the overload of sulphur. Concerning sulphur allergies, I DO hear that most folks do fine with Diamox, even with a sulphur allergy, but obviously, you and your doctors will want to be careful with that, certainly. Some doctors (usually allergists) can put you through a desensitization program so that you can tolerate most anything. I think that may be important, because we don’t really have a non-sulphur alternative to lower our intracranial pressure, dad gum it.”

Although I personally am not aware of having any sulphur problem, my dosage of Diamox started low, then I built it up and it made a big difference to head and eye pressure problems. It might be worth you starting low, testing the water so to speak.

The Zantac, I take 2 tablets daily, one in a morning and one at night but I’m currently trying to wean these down, as I get the impression that it’s not wise to be on them long term.

The Cetirizine (Zyrtec) again I started low (under the supervision of an immunologist) and worked my way up. I’m now taking 3 of these a day, spaced out evenly over the day.
Barbara
(UK)

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