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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Neuroprotek questions

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Neuroprotek questions › Reply To: Neuroprotek questions

May 3, 2018 at 5:58 pm #6280
Anneal
Participant

Thank you Dr. Diana for taking time out of your busy schedule for your reply. I looked at the reference that you mentioned and I think you’re a hundred percent right.
I don’t want to have pots but I suppose it shouldn’t surprise me. I recently remembered when I was in my early twenties there was a time where I would stand up, cross the room and be too tired and dizzy and have to go lay down and then after a couple minutes of laying down I was fine. awake. alert. not tired. but as soon as I stood up it was really hard. I would walk across the room and be so tired I’d have to lay down again. And the brain fog really started bad. I went to all sorts of doctors and long story short they tried to psychoanalyze me… why would this thin, athletic, competitive, fairly attractive young woman be sick? They even made passes at me. Pretty much gave up on most doctors after that. But I think it may have even started around 8 years old. now it still happens but I’m sort of used to it. I haven’t been able to accomplish what I would like to because of fatigue but as I mentioned the parasym plus, Diamox, and H1 antagonist has changed my life so much for the better including unexplained anxiety and anger. it’s nice to feel calm and I miss it when it’s not there. I’ve also found a great internist who is very receptive to your work. I haven’t been officially diagnosed with pots yet but if I am then I will be glad to participate in your study.

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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