Hi everyone,
I was lucky enough to find Dr. Diana’s videos online and feel SO fortunate to have found this forum. I have been very ill since June 3rd with so many body systems affected, the most debilitating has been peripheral neuropathy, walking difficulties including a foot drop, and constant nausea with light-headedness. I have fainted twice and have somehow lost 10 lbs after spending a month on the couch. I have been through tons of tests at Kaiser, but have had very little luck getting a diagnosis. I have gotten very good at waiting, staying strong, and advocating for myself despite the dismissive attitudes of my doctors.
I clicked on this link because I was curious what blue sclerae was. I was shocked to see the photos, this is exactly what I woke up with the other day. I sent images to my doctor, in the event he thought they were relevant to my symptoms. He replied saying he would ask an older doctor he works with, but that was a week ago and still no reply.
So my question is, what conditions is blue sclerae associated with and is it a clue toward diagnosis?
My photos are not attaching because they are too big. I will try to compress and upload them separately. Thank you SO much for caring enough to read this. Any feedback is GREATLY appreciated!
Sorry I did not see your post. I have Ehlers-Danlos Syndrome. The Blue sclera are seen in EDS, connective tissue diseases, osteogenesis imperfecta, AIDS, Marfans, Bloch-Sulzberger syndrome, Foelling syndrome, some dwarfisms, Turner syndrome, Werner Syndrome, and a few others. It is most common in diseases of the connective tissue. My guess is you have EDS.
Shonda