Hey, HH, that’s GREAT!! Do you have POTS, too? If so, we could include you in our study of looking for changes in the vessels in the back of the eye, if you’d like. We’re about ready to wind it up! If you’d like to PM me and let me know when you’re coming, I may be able to show up and say ‘howdy-do’. 🙂
LOL!!! I did! I’ve had the good fortune of already meeting your wonderful husband! Not sure if I have POTS but am suspecting it as I took my pulse one day after doing nothing more than lifting a small box from the floor to a table and it was 162bpm. WOW! (O,o)
Dr. Francomano is also listed as a provider on my insurance (am I just blessedly lucky or WHAT???) so I plan to make an appointment with her here shortly. I’m fortunate in that I am in a position where I am able to go anywhere in the country to get what I need from a medical perspective…so I have no qualms about going to Baltimore, especially if it means cutting out the aggravation and frustration of dealing with doctors who wouldn’t be able to find a case of EDS with both hands, a flashlight, a tour guide and a map. Been there…done that…and the only reason I’m anywhere near a diagnosis is because, after TWENTY YEARS of searching for answers, I really really believe I have found it….thanks to the PATIENTS in the EDS community and EDNF. I kid you not…my vet knows more about EDS than any doctor I have spoken to YET! How sad is THAT?? Yikes!
I would LOVE to meet you! I will definitely give you a heads up as to when I am coming! How EXCITING!!