How cool! I’m a bit jealous I must say. I found a pretty good eye dr when I had a sudden onset of eye pain last Feb. She is unfamiliar with EDS and chiari but open enough to learning. For example, when I mentioned that pain with side-to-side eye movement is a noted chiari symptom she asked if I had any materials on that. As it turned out I had the Journal of Neiroscience article with me that my neuro refused to look at. She GLADLY took it and was excitedly talking about how she was very happy to have the info and to keepmlearnin, especially across disciplines. Quite the opposite of most docs I find.
So, I’m sure you will be in good hands with the other Dr D as well. (That’s got to be confusing having two DrD’s in one house. 🙂
I’ve had eye pain for about a year with one episode where it was very bad. Most often it’s a dull ache that flairs when driving or reading text on the TV. Just saw the ophthalmologist and he did all his tests and said he has no idea why I have eye pain. It seemed to coincide with an episode where my whole back seized up too. That’s a dull ache now all the time. I’ve always had upper back and neck issues. Now the jaw has lit up and my shoulders. No one is putting anything together. I had a singular episode of painful swallowing. May have been calcific tendonitis in an anterior cervical spinal muscle according to the ER.
Don’t give up! When one doctor doesn’t see anything wrong, I betcha’ you’ll find another that does… Did they rule out retrobulbar optic neuritis? Do you have any hydrocephalus? When my pressure is a bit eye, I can get some eye pain that usually coincides with neck pain. Hmm. So hard to tell over the internet! I would seek another opinion, if you can. I remember my internship in the military, and 5 doctors would look at a patient, and most would miss the diagnosis (a funky case of uveitis comes to mind). Even with the same education and intelligence, their exposure to special cases shapes their knowledge, too. Hang in, my friend. 😉