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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Pain Triggers

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Pain › Pain Triggers › Reply To: Pain Triggers

May 5, 2012 at 9:03 pm #2117
Barbara
Participant

Hello,
I’ve had so many different kinds of pain, it’s difficult to know where to start.
Occipital Pain – this I awoke with, so something that happened overnight triggered it.
Dull Discomfort at mid-section top of head – again I awoke with this every morning.
Pain Behind Eyes – sometimes night but more often morning, worsens if you rub the eyes.
‘Ice-pick’ short-lived stabbing pains in head – at any time, don’t know the trigger.
Jaw aches (from time to time) – just by chewing.
Neck & Shoulder Pain – worsened by sitting still (at computer!) improved with heatpad.
– cured altogether with a philadelphia collar on 24/7 (and headache!).
Upper Arm Pain – triggered by lifting arms, worse when above heart level.
Elbow, Knee & Finger ‘Joint’ Pain – there most of the the time now (10 years after accident)
Hand Pain (wrist, general tissue, muscle and bone itself) – Improved with Vitamin D (& HRT)
Lung/Chest Wall Pain – (triggered by clotting type events?) takes weeks to resolve
Chest Tightness – not really pain, more discomfort, like being squeezed. Many things trigger:
e.g. standing up too long, or anything that demanded effort, small domestic tasks:
e.g. emptying dishwasher, peeling vegetables, stirring pans whilst cooking,
grating anything, beating anything, slicing bread or roast meat, etc
Lower Oesophagal Pain – gastric reflux obviously, triggered by anything wheat, sometimes rice.
Stabbing Pain (front to back) alongside/underneath stomach, rare – don’t know what causes this
Mid Upper Back Pain – Sitting too long at the computer triggers this (get pricking Lhermittes)
Very Low Back Pain (Like a horse has kicked my coccyx!) – I think it’s from sitting too long.
Bottom Pain – for some reason this worsens if I have more sugar than usual, as does other pain
Upper Leg pain – muscles no longer strong enough to straighten if squatting, need all 4 limbs!
Calf Pain – Hurts if I’m still, hurts if I move for too long (can’t win!) coldness worsens!
Cannot raise legs to level with bottom, causes cramp, so have to sleep tilted.
Used get cramp-like pain (weird – shins would go really thin) twitches followed.
Leg Tissue Pain – cannot cross ankles, or bear any weight on legs at night, tissue collapses
Skin soreness, knuckles – can’t sleep with fingers intertwined, this causes soreness overnight
Skin soreness, general – can’t wear textured clothing, or anything tight, indents tissue.
Feet Pain – pads under feet seem diminished, padded soles help, thin soles worsen pain.

Things that worsen pain in general are:
Coldness
Head being in flexion
Something that happens overnight (don’t know what though)
Sugar (also worsens sores, or any bleeding I might have)
Foods – Rhubarb, possibly tomatoes
Hope this helps somebody to figure it all out.
Regards
Barbara
(UK)

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