Does anyone have recommendations for Dr.s who deal with MCAD/Mastocytosis? I live in central Pennsylvania, closer to Pittsburg than other big cities.
Hi Christi, If you have EDS or POTS (and even if you don’t, actually) THE doctors to see concerning mast cell issues are Dr. Castells and Akin — they are in the same office in Boston. Wow, are they good! Their number is 617.732.9850.
If that won’t work for you, the folks on the forum at http://mastcelldisorders.wallack.us
are wonderful and may be able to recommend someone a bit closer to home. Please let us know if you find someone you like, OK? 🙂