Hi Camille, I’m so sorry you are dealing with Hyperadrenergic POTS. You may know that was my diagnosis, too, and it was HORRIBLE. I have a real soft spot for the patients I see at POTS Care who deal with this beast. Sadly, we are not all alike, and we need to located the underlying problems prior to being able to treat it properly. Having said that, you likely know from The Driscoll Theory book that many of us are prone to high intracranial pressure. That certainly needs to be corrected. My doctors tried hard to suppress my overactive sympathetic nervous system (I popped Xanax like candy!), but no one ever considered the possibility that my parasympathetic nervous system could be defunct. That turned out to be a huge problem, but I eventually figured out how to correct that — it is now a patented product at http://www.ParasymPlus.com. Interestingly, my kids did NOT have hyperadrenergic POTS (my son was a fainter and my daughter had “regular” POTS), but this was still necessary for their recovery, too. You can see more about how I figured this out at my lecture at the University of Houston here:http://prettyill.com/videos/watch/pots_what_have_we_been_missing_part_2 Hang in, my friend —
this condition is completely misjudged by most doctors as an anxiety disorder. No, this is a medical problem that has answers! Gentle hugs..