Unfortantly, that is what I am struggling with right now. My age & that EDS is rare. I am on my third time applying for disability. I was just denied again at the appeal level and am waiting a hearing which is another 12-18 months out here in WV. It has been since Oct. 2009 when I first applied. 🙁 Most stressful thing I have ever been with. Go to your state’s legal aide office for help, contact your congressmen, and get an attorney!!!