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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Disability

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › Disability

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  • September 3, 2013 at 2:13 pm #562
    Lab-Scientist-Lady
    Participant

    I can no longer work? Any tips and advice for getting disability? I am fearful that I will not be covered because of my age, and that EDS is not well known. I have three kids and with all my health problems and need the coverage.
    Thanks,
    Shonda

    September 6, 2013 at 2:54 pm #4296
    Ashton7987
    Participant

    Unfortantly, that is what I am struggling with right now. My age & that EDS is rare. I am on my third time applying for disability. I was just denied again at the appeal level and am waiting a hearing which is another 12-18 months out here in WV. It has been since Oct. 2009 when I first applied. 🙁 Most stressful thing I have ever been with. Go to your state’s legal aide office for help, contact your congressmen, and get an attorney!!!

    September 6, 2013 at 3:05 pm #4297
    Lab-Scientist-Lady
    Participant

    Thanks. I am sorry it taking you so long. Your story is similar to what I have been reading. 🙁 . As if EDS is not enough to deal with.:-S

    September 10, 2013 at 5:59 pm #4320
    natalia85
    Participant

    I havent applied yet, But when i do, i am getting a disability lawyer. That is the best advice i can give you. you dont have to pay them up front, they will keep a percentage of your disability backpay. From everything i have researched, it is SO worth every penny. Ive known people who have been appealing for 5-10 years for disability.

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