- This topic has 1 reply, 1 voice, and was last updated 3 years, 10 months ago by .
- You must be logged in to reply to this topic.
Hi Dr. Diana,
I have a GP (our equivalent of your MD) who has suggested I take SAM-e to relieve my many and varied CFS and IBS symptoms. I am currently a sickness beneficiary, and wanted her to write a letter to my case manager asking for help with payment for Parasym Plus. She said that SAM-e was all I needed, as it also raises levels of acetylcholine.
I have noticed a marked improvement in my CFS symptoms after using SAMe for 6 weeks (no impact on digestion yet) but after I slept in a room with mold last week, and a few days later had a strong reaction (bright red stinging rash over face, neck, lower arms, elbows, knees and feet) to traces of industrial laundry liquid, my CFS symptoms have returned with a vengeance.
She’s not interested in the possibility of me having MCAD because, “it can’t be cured anyway”, but I doubt that the SAMe will address my histamine related symptoms? Could you please explain to me, so I can explain to her, what Parasym Plus can provide that SAMe won’t? Also, is it even advisable to take both supplements? (I already printed out and gave her the diagnosing MCAD article from your resources section, thank you for that)!
I had great success with my doc by forwarding him a Youtube link to Dr. Driscoll’s University of Houston presentation several days before my visit. And, yes, he watched it. And, yes, it influenced him. I believe the key was that it is presented at University of Houston and you might want to emphasis that to your doc. Also, by sending the link ahead of my visit allowed him to digest the new ground breaking info so he was prepared and didn’t have to feel stupid by not being familiar with the info. While my U.S. insurance does not cover it, I still wanted him involved. He is also willing to have me try Dr. Driscoll’s Diamox protocol if Parasym Plus does not relieve my headache. He also has other hypermobile patients and is very interested in how it works for me. Hope that helps.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross