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Anyone with asthma, could you tell me which asthma meds you find help the most in mast cell activation/asthma? I’m taking my daughter to our allergist next week and I’m hoping he’ll try her on more of a mastcell protocol for asthma.
I have EDS, POTS, and probable MCAS. Singulair has helped my asthma tremendously.
Good luck, I hope you find something that works.
Thanks, mommy2seanp. She’s on singulair and advair. I think the singulair makes her cranky but she needs it for her asthma. I do think it helps but the advair I’m not so sure about. Her brother and I have more nasal symptoms and NasalCrom works really well for us so cromolyn for the nebulizer is something I’m going to ask about. I appreciate your input! My best, SweetFeather
I didn’t do well with Advair and actually suspect it set off an anaphylactic reaction in me. My sister is on the cromolyn nebulizer and is very happy with it so far.
Another option might be Ketotifen. It’s an H1 blocker, Mast Cell Stabilizer, and Asthma controller. I’ve been prescribed it but only took one dose so far. I had some itching and dizziness so have not continued with it yet.
My asthma can be pretty severe and I’ve found some foods can also trigger it. Keep me posted and let me know if anything helps.
Are you allergic to molds? My daughter is allergic to sesame, feathers, grasses, and molds. Our allergist said he finds many with mold allergies often have more severe asthma and can be difficult to treat. She was allergic to beef when she was younger. She hasn’t had hives lately so I’m hoping she hasn’t developed any new food allergies. Thanks so much for your input! I’ll let you know what we find out. 🙂
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