- This topic has 5 replies, 2 voices, and was last updated 11 years, 3 months ago by .
- You must be logged in to reply to this topic.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Asthma?
Anyone with asthma, could you tell me which asthma meds you find help the most in mast cell activation/asthma? I’m taking my daughter to our allergist next week and I’m hoping he’ll try her on more of a mastcell protocol for asthma.
I have EDS, POTS, and probable MCAS. Singulair has helped my asthma tremendously.
Good luck, I hope you find something that works.
There’s also cromolyn for the nebulizer.
Thanks, mommy2seanp. She’s on singulair and advair. I think the singulair makes her cranky but she needs it for her asthma. I do think it helps but the advair I’m not so sure about. Her brother and I have more nasal symptoms and NasalCrom works really well for us so cromolyn for the nebulizer is something I’m going to ask about. I appreciate your input! My best, SweetFeather
I didn’t do well with Advair and actually suspect it set off an anaphylactic reaction in me. My sister is on the cromolyn nebulizer and is very happy with it so far.
Another option might be Ketotifen. It’s an H1 blocker, Mast Cell Stabilizer, and Asthma controller. I’ve been prescribed it but only took one dose so far. I had some itching and dizziness so have not continued with it yet.
My asthma can be pretty severe and I’ve found some foods can also trigger it. Keep me posted and let me know if anything helps.
Are you allergic to molds? My daughter is allergic to sesame, feathers, grasses, and molds. Our allergist said he finds many with mold allergies often have more severe asthma and can be difficult to treat. She was allergic to beef when she was younger. She hasn’t had hives lately so I’m hoping she hasn’t developed any new food allergies. Thanks so much for your input! I’ll let you know what we find out. 🙂
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross