- This topic has 3 replies, 2 voices, and was last updated 10 years, 6 months ago by .
- You must be logged in to reply to this topic.
I was diagnosed with Small Fiber Neuropathy a year ago and last week I underwent a tilt table test my neurologist suspects autonomic neuropathy. I got nauseated, dizzy and lightheaded. My results won’t be in for a few weeks. I font know anything about ANS or POTS. What is the medication given for this disease?
I also write a blog about living with Small Fiber Neuropathy you can read it at http://www.myneuropathyandme.blogspot.com
Hi Love 62, Treatment in your case may be the “more typical” fluorinef, compression stockings, etc that many of us who do not have small-fiber neuropathy may not do well on, long term. Hopefully you will know more when your results come in, and we’ll have more to offer you! Fingers crossed for good results! 🙂
I’m the opposite. Ha… I’m 24 and was diagnosed with Autonomic Dysfunction a few years ago after a positive tilt table and other symptoms I was having. Usually it stays pretty controlled with Florinef. I’ve tried compression stockings but can’t stand to wear them… I’ve also tried Midodrine but couldn’t handle taking it due to supine hypertension.
Recently, I had a nerve conduction test done which shows severe neuropathy, worse on my left but not good at all on the right either. I’m awaiting a follow up appointment with my neurologist, but I’m highly suspecting Autonomic Neuropathy is the problem, especially since I don’t have Diabetes Mellitus. I also have the other symptoms involved such as urinary retention, postural tachycardia and vasovagal syncope, etc etc… But I am wondering if there’s any way to prevent or treat the neuropathy to prevent further damage? And if it’s very common to get it. I also have Lupus which I know can cause problems, too. Just curious. Thanks 🙂
Hi Susan, I’m certainly no expert in this, but wonder if your autonomic neuropathy is autoimmune (much like lupus)? Perhaps even directly related to lupus? I don’t *think* anyone knows much about stopping this, yet, but I could be wrong. What do your doctors say? I had to chuckle at your ‘bad on the left, not good on the right’. Ha. I think most of us can relate! 😉
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross