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Well, as mentioned before, my bloodwork had never been reviewed with me. Somehow, in the process of struggling to prepare for possible Mayo referral, I ended up a super lay person googling my abbreviated blood tests – just a few of the chronically abnormal ones.
I feel quite furious as I eventually take note of my ICD-9 diagnosis of 279.9; unspecified disorder of immune mechanism. Dr.Y, who ordered the bloodwork ran 24 tests (grouped into about 15 tubes) of blood out of me, received this result from the pathologist back in April of 2011. Well, I just saw this same doctor for my strep foot (the hypergranulation issue). Dr.Y refused a wound culture, told me that I had no immune disorder and that was for people with AIDS and to get on with my life, my foot wasn’t infected. Dr.Y did Rx an antibiotic that didn’t work and told me not to use the triple antibiotic that the previous doctor had recommended (she had said it would take a long while to heal since I am immunocompromised). The same day I was told this, I went to yet a third doctor and she scalpel-ed the hypergranulation (after refusing a wound culture citing it wasn’t infected but upon my persisting and persisting and persisting) and I was told around 40 times on three occasions that it had been strep (I even audio recorded my conversation with the different staff as we repeated over and over and over again that it was strep but they simply hadn’t entered the lab result into the system as of yet). Now the lab report is missing and nobody wants to admit to the strep anymore. They say there is only one type and it’s no big deal. You can’t wound culture or it’ll come back mixed oral flora. In my world, you use 2 freakin Q-tips and everyone knows that you can send away for species typing!!! Anyway….
EO high blood or EOS high blood entered in a search pulls up: Eosinophilia. I have elevated levels in each EO they ran even when they ran multiples within the same panel. This is over years. I’m pretty pissed to say the least! At any rate, it appears that eosinophilia is associated with mast cell disease. Dr Diana thought that I had it (from some of my communications) and recommended Z&Z protocol. I had not been consistent, in part, because I want a doctor to manage my care since I have such a multitude of issues! The EO goes to nearly double the highest normal level in some of the panels. I see no panels where it is normal.
MCV and MCH is also chronically high. Not sure if this fits with anything.
There are a multitude of other, mostly H’s but some L’s.
I can’t tell you how angry I am. I’ve been begging for diagnostic proof and knowing that there is no way a human body can be in this bad of health without some clear indication!!! I’m so furious at all of the back talk and eye rolling that I’ve had to endure!!!
I’ll have to figure out how to handle this, I guess. Why even do the bloodwork if you’re never going to look at the results or address ANYTHING!! It’s such a trauma for me, having an acute needle phobia. I can’t believe how mad I am. Thank goodness it’s not a weekday. LOL. God willing, I’ll have enough energy to come up with a course of action by Monday or Tuesday. I’m beat from the few things I’ve discovered.
OH, PLEASE, DOES ANYONE HAVE ANY OTHER ABBREVIATIONS IN THEIR BLOODWORK OR TELLTALE SIGNS THAT RELATE TO CFS, DYSAUTONOMIA, CCSVI OR ANYTHING ELSE. Anything will help since I feel dreadful and am not being properly managed at all!!
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