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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › C1-C2 instability in 8 year old with EDS
My daughters orthopaedist did flexion/extension/rotation xrays last week. He said she has cervical instability.
It was a follow up appt for her knees and to get her PT script for the next year…while there, she told him she gets headaches everyday at school (we are awaiting her new glasses, a big vision change this yr.). He asked her where they were and she pointed to the middle of her eyes and said “but farther back”, he asked her to walk down the hallway. Then the next thing i know their taking her for xrays!
Any ideas as to why he asked her to walk and what he could have noticed?
He gave us a list of things she should not do, trampoline, roller coasters, horseback riding, and the like. Said if she has any numbness or tingling in her arms or hands to call and he will get her in to see a neurosurgeon!
Why? Plus shes 8, is she really gonna know what that is? Her hands already “prinkle” after writing…
She also has a deep sacral dimple that was checked at birth for spina bifida. All good. But not I’m wondering if its connected? My dad and sister both have pilonidal cysts that leak spinal fluid.
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