- This topic has 1 reply, 1 voice, and was last updated 4 years ago by .
- You must be logged in to reply to this topic.
This product is helping my daughter quite a lot. What is the maximum amount she can safely take? She is on quite a few prescription drugs, and if this could help reduce her need for some of them, it would be great!
It depends on how deficient in acetylcholine your daughter is (and we are all a bit different, of course). When I first started it, I needed seven doses a day for a couple of days — but please understand that I was a severe case. At that point, I was having trouble staying awake even three hours a day, and my gastroparesis was awful. I could actually feel the fatigue creep back in when I needed another dose. Gads. I know of one person who cannot seem to go below 5 capsules/day without her gastroparesis returning, but *most* folks I hear from do fine with 2-3 capsules in the morning. If your daughter takes too much, she’ll likely notice that her heart rate will slow and her eyes and mouth will start to water. I hope she is feeling much better now! 🙂
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross