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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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CCSVI, one year later

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › CCSVI, one year later

  • This topic has 1 reply, 1 voice, and was last updated 5 years, 11 months ago by Barbara.
Viewing 2 posts - 1 through 2 (of 2 total)
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    Posts
  • February 8, 2017 at 5:02 pm #1081
    Norwaymom
    Participant

    I still have the same symptoms as I described a year ago. Hope someone can read my post about ccsvi suspicion written a year ago, and give me some advice…
    Really dont know what to do..
    I have more and more symptoms of MS, as I before have EDS, POTS, chronic fatigue, fibromyalgia, migraine, pituarity tumor, and 4 little tumors in thyreoidea . Balance is not good, and have had neurogenic blather the last year.
    My neck is a mess, with atlanto-axial instability, and cranio-cervical instability, scoliosis, prolapses, Modic 1, chiari 1, ah, really feeling not good.

    Is there medication smart to try out to handle living with this?
    Is Diamox the best treatment for this?

    I have asked my GP, and a cardiologist to try out Mestinon for my POTS, and wait to have the prescription from the doc. I hope it helps for my weakness, fatigue, and more. Maybe it can help for my stomack issues too. Side effects of that medication is more peristaltic movement, and for my cronic constipation that will be a side effect deeply wanted. Advice?

    February 14, 2017 at 11:16 am #6104
    Barbara
    Participant

    Just read your first post too, in it you said you study all you can about, EDS, ME, POTS, CCSVI, scoliosis, migraine, spine health, spina bifida okkulta – do you suffer from all of these ? If so, I notice 3 things:-

    1. You have indications of Magnesium Deficiency:-
    Migraines
    Connective Tissue Disorder (EDS)
    Poor Energy Regulation (ME)
    Bone Health Issues

    Magnesium also helps to lower the raised intracranial pressure, which could help if you can’t get Diamox.
    http://prettyill.com/videos/watch/the_magic_of_magnesium

    or you can read about it at:-
      http://prettyill.com/downloads/Magnesium_and_EDS_by_Heidi_Collins,_MD.pdf

    Improving your diet to include more magnesium helps, which can be found in Dr Mark Hymen’s video, that lists foods high in Magnesium:-

      http://www.youtube.com/watch?v=GUWL1o2hSrs&feature=player_embedded#t=328

    2. You also have indications of B Vitamin deficiency, particularly Folate, shown by your:-
    MS
    Chiari 1
    Spina bifida occulta
    Scoliosis,

    3. You need Vitamin C regularly throughout the day, to help
    Heal the body
    Produce better quality collagen
    Aid the immune system
    . . . . and so on.

    Hope this helps

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