- This topic has 2 replies, 2 voices, and was last updated 8 years, 3 months ago by .
- You must be logged in to reply to this topic.
I have confirmed POTS, EDS, dysautonomia, etc. it started out-of-the-blue 11 years ago and it only took 9 years and 13 doctors to get it right!
Anyway, one consistent symptom I have that always gets a ‘huh’ from everyone is chest heat. Sometimes it just feels like a warm simmer over my heart. Other times it starts in the left center of my chest and seems to shoot out all over my body in waves of fire…I call these zings. Does anyone else have these or know what it is or am I truly weird?
Truly weird. 😉 Kidding!! It seems we all have zings of all kinds. Mine may not be located from my chest, though… How about everyone else? We all seem to have chest pain on a regular basis. That’s a fascinating symptom…. Can you explain more?
Sorry it’s been a few days…had to get my daughter ready for a retreat. Anyway…another way I can describe it is like I can almost feel the adrenaline pumping out…sometimes it is just one wave but if it keeps going then it progresses to severe body tremors, panic, emptying of bowels, nausea. It is a wave of heat that starts in my chest and goes throughout my body. Am I making any sense…comments or anyone with anything similar? Oh…with the simmering heat in the center left of my chest, also can feel it in my upper left arm
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross