Chiari?

[Saria]

Hello
I am new on here 🙂
I have EDS and POTS (and probably MCAS) and had a MRI in october as I seem to have developed an esophoria (divergence insufficiency). The neuro opthalmologist wanted to check for causes of CN 6 palsy, amongst which a Chiari malformation.
Long story short , i moved countries so have the MRI and the radiologist report (all clear) but couldnt attend the follow up appointment and will now have to wait until I have insurance here.
Attaching a couple of screenshots, if anyone has any insight ☺️

Attached files

[Barbara]

Yes, see the post I’ve just replied to, I think you might have the same.

http://prettyill.com/forums/viewthread/2496/

[Barbara]

Any instability in this area could be causing a ‘pincer’ action on the underlying brainstem/spinal cord, see the 2 dots.

This could cause turbulence in the flow of cerebro spinal fluid, as well as irritate the underlying brainstem/spinal cord.

Whilst you’re waiting for further appraisal, my advice would be to wear a Philadelphia collar (with linings!) 24/7. Persevere with it (because it is cumbersome) but notice the improvement, some might be immediate and other symptoms will subside over time.

Attached files

[Barbara]

Hey Saria,
I have compared various collars and braces on this post:-

http://prettyill.com/forums/viewthread/575/#2883

It will give you more insight on what works and what doesn’t (my problem is similar to yours)

[Saria]

Thank you so much for your thorough reply 🙂
I will take a close look at the links.

[Author]

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