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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Could this be relevant to your theory Dr Diana?
When I read this this morning I immediately thought of your CSF fluid dripping out of your nose.
“Several nontraditional routes of fluid circulation in the brain have been described, however. In recent years, neuropathologists Roxana Carare and Roy Weller of the University of Southampton, U.K., reported a system by which CSF—produced in the ventricles—exits the brain via the mucous membranes of the nose and by which interstitial fluid (ISF)—solute-bearing liquid filtered from the blood—leaves by traveling along the basement membranes of capillaries and cerebral arteries. ”
http://www.the-scientist.com/?articles.view/articleNo/43120/title/Brain-Drain/
Ruth heasman
Hi Ruth, Thank you for sharing (and for thinking of me and my nose – lol). It’s impossible for me to tell if this is happening to me, of course, but it is an interesting possibility. Being on the “cutting edge” of figuring this out, I’ve learned that we are lucky of we can even get this fluid tested, much less figure out where we’re leaking! Because no matter where it is coming from, I knew that if I reduced the pressure in my head, I’d have a chance of stopping it. It stopped, fortunately, and only rarely happens now if my pressure goes up (you have likely heard that I’m not on Diamox currently — no need. I need it “every once in a while” now, and am glad that I didn’t opt for a risky brain shunt. Whew). Fingers crossed that we can all keep our high pressure at bay! 😉
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