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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Desperately searching for answers and so very scared :(

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Desperately searching for answers and so very scared :(

  • This topic has 2 replies, 2 voices, and was last updated 6 years, 5 months ago by Barbara.
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  • October 12, 2016 at 4:16 pm #1048
    beatlebrooke
    Participant

    Hello everyone,

    I haven’t been formally diagnosed with POTS (Haven’t had any autonomic testing done) But I have spoken with a neurologist that suspects I have POTS. I just had a baby a month ago and since the 3rd trimester I have been feeling very very dizzy more of an off balance type of dizziness, vertigo, I have felt weak upon standing. When I stand up my heart beat goes from 80-100 to 120-150. I feel out of breath, nauseous at times, anxious, on edge, uncomfortable, scared, I have a hard time sleeping more than 5-6 hours, and most of all the most painful symptom is I am unable to care for my baby. I am so scared that I am not going to get better and that this is my life. Everyday I wish I could just die because I feel so awful and in the medical profession things are so slow. No POTS specialists where i am take my insurance. I am just tired of fighting. So tired. I tried SSRIs to improve my mood and they make me sick to my stomach. Same thing even tried to take magneisum same thing happens. I just don’t know anymore. I am afraid to leave my house. I have no life. Seeing your baby and wanting to hold her but not being able to breaks my heart to no end. I am living with my mom 2 hours away from my home and fiance cause of all this. It hurts so bad. I am not sure what to do from here 🙁 But thats my story. What type of POTS does it sound like i have…does it even sound like POTS? My heart does this consistently on a regular basis…….

    October 12, 2016 at 4:16 pm #6027
    beatlebrooke
    Participant

    At this point I almost want to go to the hopsital and just bed for them to admit me and figure out what is going on I am that desperate for help 🙁

    October 16, 2016 at 2:20 pm #6028
    Barbara
    Participant

    Quick reply, I am so sorry to hear of your suffering, it couldn’t be worse timing could it. Yes it does sound like POTS. With regards to Magnesium, take Epsom Salt baths instead and, equally as important, remember to take a daily multi-vitamin and mineral, try not to ‘hit and miss’ with taking it, as it really does help. Even if your diet is great, your absorption rate might not be so, better to have the supplement than leave your body struggling to cope.

    Adequate nutrition is important and cannot be neglected, if you are to remain strong, so if you’re having food issues I would attempt to eat ‘little and often’, as is generally advised if you do have POTS.

    I also know that dehydration can be an issue, which can affect you ‘big time’, so you need to not only make sure you drink the recommended daily fluids but also that you intake adequate salt, so that the fluids you drink are retained.

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