August 2, 2012 at 11:02 am #282Give My Daughter the Shot!Participant
Hi. I know about some of the diagnostics available for my pursuit. Ugh! Can I get some suggestions for diagnostics and the reason/justification for such. I may be making progress with medical care and would be so grateful for simple medical justifications, explanations, and appropriate diagnostics that coordinate with such.
What are the blood tests for mast cell disease?
Are there any blood tests for dysautonomia? Any other tests for dysautonomia?
I think the CCSVI is an MRI or MRV. I’m inclined to wait til the head exploding pressure and then try for that. Yes, I have chronic varying pressure but it does become alarming as heck!!! It’s already happened a couple of times and they’re injecting me with dye and doing CAT scans. Would the CAT scan show anything if I could get it? I mean to an expert doctor, like Diana? I think she needs the MRI, right?
What else can I do? Please put it into simple terms for me so that I can convey it to the doctor.
Is there a test for CFS? I have the features like left ventrical dystolic dysfunction and I’m pretty sure ALL or virtually all of the others. I looked at Dr. Cheney’s clinic and thought of how I’d be fittin right in. The LVDD is provable though and has been documented. I remember that part.
I just want provable diagnostics or a means of tying in my diagnoses. I have specialists who are great in their field but the puzzle pieces are not put together at all for me right now. As bad as I feel, I am in a hurry to “slow the degenerative process”.
I guess even if I could alleviate the treatment of myself as possibly being a hypochondriac – it would be a victory.
Please help. I think I can get an order for bloodwork if only I can explain and justify it. Any other diagnostic suggestions would be so appreciated.
Also, why are my fingers hurting so badly on the pads when I type?August 2, 2012 at 11:17 am #2719Give My Daughter the Shot!Participant
Even a checklist of some sort. Maybe per diagnosis: CFS checklist of diagnostics, then another for dysautonomia, also for fibromyalgia, then CCSVI.
Any organized, easily presented, something-or-other to take to the doctor. I’d love if I could print and mark out name (to preserve confidentiality). My poor brain is so bummed and overloaded with medical info. So much to overcome. Finger tips – ouch.
Thanks very much for any possible helpNovember 9, 2012 at 2:13 pm #3112SunshineParticipant
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