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I just started Diamox today, I have a tilt table test referral pending so I’d guess I will be having it to confirm POTS in the next 4-8 weeks. I don’t want any medications to interact with my results as it has been nearly 18 months and I need this test to show my POTS reactions. Would it be advisable to take a break from Diamox for the tilt table test and if so how many days before should I stop?
I would stop 2 days prior. Please let us know how you do!
Thank you so much Diana, you’ve put my mind at rest so I can take the Diamox without worrying. I have to tell you that without your research I wouldn’t be taking Diamox at all, my neurologist agreed after reading your POTS Care brochure that it could help. Unfortunately I’m signed off back to my GP so if it works for me I will be pursuring a solid diagnosis with a different neurologist. Thankfully the POTS is unquestionable and cardiology are behind me, they just need to tilt table for confirmation. I just wanted you to know how grateful I am to you for your work, it has really been a beacon of hope through a tough time.
Thank you so much for your kind words. I’m glad that my (incredibly lengthy) journey can be of help for you. You are also the first person I’ve heard from who commented on the POTS brochure. Awesome! I’m so glad you and your doctors found it helpful. 😉
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross