Did you see the vid about the end of my POTS? Please respond if you're interested in the clinical trials!

[MattiesMom]

Yes, just watched the video. I am trying to understand, are you talking about a clinical trial involving CCSVI/ angioplasty for the clinical trial, or something different? P.S. I have pictures of me laying down, where my vein in my neck gets large like yours does in the video.

I am very interested in the clinical trials.

[Dr. Diana]

Yes, just watched the video. I am trying to understand, are you talking about a clinical trial involving CCSVI/ angioplasty for the clinical trial, or something different? P.S. I have pictures of me laying down, where my vein in my neck gets large like yours does in the video.

I am very interested in the clinical trials.

Hi MattiesMom, the trials we will start with will be used to address POTS medically, and then the HORRIBLE fatigue and brain fog. I could not believe how reversible this was when properly targeted! If we need angioplasty, we will go for that only when the CAUSE of our vessel damage is treated properly first. I don’t believe we will end up with “traditional” angioplasty. We’re “special”. 🙂 When the time is right, I’d like to bring in someone who can get up to speed about our special issues. Otherwise, I fear that many of us will end up with further vessel damage, and will be very prone to thromboembolism (and the treatment won’t hold, of course).There is a better way to do this! Meanwhile, we need relief with our POTS, fatigue and brain fog. I humbly believe I can help us with that. (Remember, I’ve been to Hades and back. I truly believed that my brain was melting… I couldn’t stand up longer than I could hold my breath. Did you notice that I give my talks STANDING UP now?) 🙂 Let’s do this!

[Barbara]

Hi Dr Diana,
It was the fact that you gave your talks standing up that initially impressed me, bearing in mind what you’d been through. Not only did you stand up for 15-20 minutes or whatever BUT you didn’t appear dizzy, out of breath, confused, sweating, or hesitant – I was instantly intrigued.

Yes, I’d be more than happy to help in any way I can, be it from experience, knowledge, to time, effort, participating in trials or contributing to funding, just name it and I’ll do whatever I can.
Regards
Barbara
(UK)
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Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; GERD; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Mild Scoliosis; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!

[Give My Daughter the Shot!]

I emailed per instruction.

[Diane]

Hi Dr. Diana,

My brother produced a video for University of Cincinnati about a gal who apparently has POTS. Wanted to share it with you. I’m hoping she can connect with you. http://www.youtube.com/watch?v=HJatamCqcHA&feature=youtu.be

Diane

[Dr. Diana]

POTS, one aspect of dysautonomia is GONE for me. Working with the root of the problem (as opposed to treating the symptoms via salt-loading, etc) may be the key for many of us with dysautonomia (EDS, chronic fatigue, fibromyalgia, M.S., chronic Lyme, etc). Setting up clinical trials now. If interested, please send your contact information to “volunteers@Prettyill.com”. If you’d like to help, please let me know! 🙂

[Dr. Diana]

I emailed per instruction.

Thank you, my friend! 🙂

[Author]

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