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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"?

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  • March 4, 2013 at 9:12 pm #3528
    Barbara
    Participant

    Also at night, i sometimes get a low rumbling in my left ears like a truck in my distance rumbling away. It hard to explain. It only happens sometimes when im laying down.

    Yes, I get these too at night, I usually wake up with it. I think it’s to do with the raised Intracranial Pressure.
    Barbara

    May 7, 2013 at 5:32 pm #3659
    amanda h
    Participant

    Hi there 🙂 I have the same issues, when I lay flat I start to feel sick, nausea, heart racing and bounding, headache. If I go further back than flat it gets so much worse. I am wondering since I have EDS and POTS if maybe there is a chari type issue going on? I have not been diagnosed with chari but I have also not have the tests for it. It my thoughts I can kinda see that laying back would either cause the spinal fluid not getting to the brain to kind of back up or maybe the pressure is taken off the brain a bit too fast I dont know, I am not a doctor just thinking maybe it works this way????? I kinda feel a bit of a paralyzed feeling but its slight its more the other symptoms and it takes me a very long time, like hrs and meds to feel better. I have many many other issues as well, like chronic everyday headaches, I live on norco for this. My heart and blood pressure are very unstable as in highs and lows. Alot of neck pain and joint pain. Sleep problems and so many other things its hard to list them all but the good thing is I see a great doctor in ohio who specializes in POTS named Dr. Grubb. He is with the university of toledo heart and vascular center. I am going to mention all of this to him at my next appt and see if he can order a test for chari. BIG GENTLE HUGGGGGGSSSSSSS to all of my POTS/EDS/CHARI/or any other related disorders, prayers so research and a cure !!!!! <3

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