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I need some help. I believe my son (and myself also) have EDS. I have been trying to find help for him for 4 years. How do I find doctors in the Milwaukee area who have any idea about EDS ?
I also need help from Dr. Dianna. He has major eye issues and Atropine toxicity which noone will acknowledge!!!He has a blue sclera which they also shrug their shoulders at. I think I really ,really need help from you.
Hi kbed, Did you see my book about EDS and the eyes? It may answer most of your questions. It is on Amazon (and ALL proceeds go to fund our research). If you have specific questions, we may be able to address them here.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross