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I have been looking into EDS and am definitely wondering if if should ask a Dr about it. I’m kinda worried I’ll look crazy though. Here are some of the Heath issue I have experienced and maybe someone can help me evaluate if/how I should approach a Dr about it.
Stroke- I’m 25, MRI/MRA showed small infraction in my cerebellum. also showed Hypoplastic vertebral and anterior cerebral artery, which I guess I could have been born with. Ultrasound also showed “somewhat globally elevated intcranial velocities”
My collar bone pops out at the end when I lift my arm-my brother can also do this, it really freaks people out.
Sometimes when I move my neck I will get a intense electrical shock like sensesation from the back of my head into my neck.
Siezures and fainting since age 8-neg EEG with no know cause.
My Dr told me to get a massage because of a stiff neck and the therapist said my first vertabrea had slipped out?
Some other things I experience, dizziness upon standing, migraines with scary visual symptoms, side pain on urination, low platelet count with pregnancys, joint pains, easy bruising and rib cage cramps…. There’s more but I won’t go on and on. I’m flexible I can doreverse namaste, thumb to forearm… Any help would be appreciated I have a appointment soon with a nuero stroke specialists and idk if it would be a good idea to mention these things to her or not?
Hi and welcome to the forum! I think your doctor will want to know about all of your concerns, certainly. I do not know if you have had a stroke, but clotting is something we see a fair amount of (do you have the free brochure from the http://www.POTSCare.com site? That may be helpful. I don’t know if you have seen our findings concerning a propensity for high intracranial pressure causing many neck symptoms (and other issues), but it is worth considering, too. Do you have The Driscoll Theory book that explains this? 🙂
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