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My daughter is 17 years old and has been in the hospital 2x for 5 days each after terrible right quadrant (upper and lower) stomach pain she would rate an 8. She said she is saving 10 for if she is dying. The pain is out of control and is affecting her ability to function. The quality of her life has taken a nose dive. She had a severe concussion January 2016. She was a cheerleader (hyper mobility…), was out of school and had to receive homebound instruction because of the debilitating pain… migraine, stomach pain, exhaustion, easily overstimulated. She finally was able to go to school 4th quarter but socialization and energy still impaired. And here we are again. She had a bad cold about a week before this stomach pain started mid July. She is constipated and seems to have fear around this pain. She is on gamapentin and amatriptaline sp? They do not seem to touch the pain and only make her slow GI even slower. She had to drink barrium to make certain there was no blockage a week ago. She started the test at 10:30 and movement was not viewed until nearly 5pm. Help! I am learning that EDS is on both sides of our families…who knew that not everyone has pain in every joint.. Just never put all the symptoms together…she is struggling so much and I would appreciate any direction. I also feel like these medicines have slowed her speech and her gate when she walks has become lax and labored. Help!!!
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