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My daughter has had these since she was 12. She now has multiple diagnoses…from EDS to autoimmune thyroid, optic neuritis, Uveitis, glaucoma, cataracts…. Suspect POTS and MCAS but not getting anywhere on these . We see Dr Kinsella and he has order Botox treatments but just watched on diamox and wonder if anyone is on this and do you take drops! Doctors in St. Louis?
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