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I have been aggressively losing my hair for 6 months and no one can tell me why. I’ve had iron infusions, seen two endocrinologists who assured me I’m not hypo thyroid, two dermatologists who both said it is telegen effluvium caused by stress and it will eventually stop, my cardiologist says it’s not POTS related, and I’ve seen two allergists/immunologists one a mast cell specialist and she flat out denied a histamine connection. I’m in the process of trying to get a referral for EDS testing. I also have the MTHFR C677T heterozygous mutation (which could potentially be the cause). I have not tested my house for mold but am strongly considering it at this point. I eat a gf, df, sf, organic, no preservatives, low histamine diet.
PLEASE if any can share insight, something that’s helped them, or just commiserate, I’d love to hear from you!
Dr. Driscoll, have you come across this as a symptom in patients?
Sincerely – Christina
I lose my hair every year when Autumn comes, usually the end of October and it lasts until March or April and then it starts to grow back, but it is not as thick as it used to be. For me, it has something to do with the barometer dropping. When it starts getting colder it happens, and apparently it happens to other people that don’t have EDS, but they lose much less hair and it is not as noticeable.
When I moved to a colder climate I started losing my hair. I also have hypothyroid and mast cell but I definitely feel that vitamin D is a component in this and mold too. It has been a much warmer year this past winter and my hair has grown a lot. More sunshine equals more vitamin D and less dampness equals less mold. Just something I’ve noticed in my life.
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