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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Fibromuscular Dysplasia anyone?
OK, my turn! Did you all know that a fair number of us can end up with fibromuscular dysplasia (FMD)? It is easy to overlook. I remember, years ago (no spring chicken here!) when Dr. Naz came out with her study showing that some of us develop this, and she thought it was a new subset of EDS. I’m beginning to believe it can affect any of us, actually. And it may be affecting me! Anybody else out there? There may even be a Facebook group for this. You all know that for many of us with EDS, we have lousy vessels, right? Well, in FMD, they get lousier! Yikes. I’d like to see a good doctor, as it looks like there aren’t a ton of specialists who treat FMD. Why we can’t have anything “mainstream” is beyond me!! Any advice or help you could offer me would be greatly appreciated. Hugs…
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross