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OK, my turn! Did you all know that a fair number of us can end up with fibromuscular dysplasia (FMD)? It is easy to overlook. I remember, years ago (no spring chicken here!) when Dr. Naz came out with her study showing that some of us develop this, and she thought it was a new subset of EDS. I’m beginning to believe it can affect any of us, actually. And it may be affecting me! Anybody else out there? There may even be a Facebook group for this. You all know that for many of us with EDS, we have lousy vessels, right? Well, in FMD, they get lousier! Yikes. I’d like to see a good doctor, as it looks like there aren’t a ton of specialists who treat FMD. Why we can’t have anything “mainstream” is beyond me!! Any advice or help you could offer me would be greatly appreciated. Hugs…
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