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Well finally we have some Drs who have looked past the I don’t know and said lets find out!
Gastroscopy found ulcerated eosophegus(sp) hiatus hernia, elongated distorted stomach with double the normal amount of digestive fluid, stretched duodenal opening. This result prompted a barium meal with follow through, which found the stomach moves and twists as my son does and that the small intestine is all one one side of the abdomen running north/south rather than east/west, and the large intestine on the other side of abdomen also running north south.
The Drs have never seen anything like it before, but are quite concerned about the twisting of the stomach and want to some how secure it so it doesn’t move and twist. Of course my sons anatomy being as it is all over the place they really aren’t sure how they are going to do this. More scans – CT or MRI will be done over the next two weeks to try and get a better look at where the different structures are, then they will literally go in and have a look and make corrections that they hope will work. Does anyone else know of something similar, we are all flying blind here and I’m hoping that someone can help
Hi Di, flying blind, indeed. I have not heard of someone else with this condition (or perhaps our doctors are not as thorough as yours!). Anyone else?
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