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Yes, she has been on flonase for a while. Flovent? I believe she has been on that before as an asthma control med, but it was not strong enough and we moved on to Advair. Another doc has mentioned that as treatment for EE, but instead of inhaling it, she would swallow it. Another question I will add to my list for Wednesday!
How did the appt on wed go?
Hi, and sorry. I was out of town for a while and my laptop got a virus. Forgot when I got home to answer because, like always…a little crazy! The appointment went well. I thought the doctor did a very good job of explaining what was going on with Jaynie. He agreed that it is most likely central sleep apnea and also thought due to the position of the tonsils, it would be good to have them removed. He too thinks after that she may need CPAP, but we can always hope the tonsil removal alone helps! So moving forward with the surgery, which is March 20th. We have once again been delayed due to illness and asthma. She went back on oral steroid today. Hoping it knocks out this flare once and for all so we can move forward with her treatment plan. How has your daughter been doing and how are you holding up? Any new news?
Good to hear from ya! Poor kid:( but yeah, if its a placement thing i could see why it will be beneficial.
Maris is doing sooooo much better! We have changed her b vitamins to methlyated form and added high dose vit d plus some others. Ion water. Balancing her eltrolytes. Slowly working on her diet…ugh. The protandim she takes is an awesome addition as well. Her feet are still a mess and she still malnurished but i think that will slowly change. The mouth is our next battle. We go to a orthodtist in couple of weeks. High palette and no room for her teeth!! Fun fun! Apr is her next echo so im really praying the vavles have not worsened. I think her next sleep study is end of apr as well.
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