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I would like to get Dr. Driscoll’s book ‘Ehlers-Danlos Syndrome: Your Eyes and EDS” however, I get the impression that it’s only available for Kindle. Does anyone know if there is a .PDF or other version available that I could download to my computer to read? I’ll still be happy to make a donation toward research. Thanks for any info.
Yes, capri, you are the only one left. But to help you, ;), you don’t have to have a Kindle to get this. There is a sneaky little line to click to get the booklet right on your PC. I took an image for you see the attachment?). See where the arrow is pointing? Tricky, I know. It took me forever to find the silly little thing, but you all know that technology is not my strong-suit! So glad to hear it isn’t just me! Enjoy! 🙂
Hi Capri,
Were you at the meeting on Sunday? I would have liked to have met you. I was the one with the three kids that had to leave early because I was not feeling well. At least when you are in a room full of zebras they understand why you can’t tolerate sitting upright. I hope to make it to the next meeting. Hopefully I will be having a better day.
ShondaAt least no one fainted this time! 🙂 Of course we all understand… My sweet daughter took it upon herself to bring cooling cloths if anyone needed them! I saw someone wearing one around her neck! Smart lady! It also reminded me that when we meet again, we should also put our user names on our name tags! 😉
At least no one fainted this time! 🙂 Of course we all understand… My sweet daughter took it upon herself to bring cooling cloths if anyone needed them! I saw someone wearing one around her neck! Smart lady! It also reminded me that when we meet again, we should also put our user names on our name tags! 😉
Hi Dr. Diana,
My husband did see a lady at the back faint. Her husband found her a chair just in time. I could have used a cooling cloth. It was so hot in there. That was adding to my nausea and pain. Where can I buy cooling cloths cheep? Is there a particular one that works best? Btw your daughter is a sweet, helpful, beautiful, young lady. I am sure you are a proud mama.
ShondaYes, capri, you are the only one left. But to help you, ;), you don’t have to have a Kindle to get this. There is a sneaky little line to click to get the booklet right on your PC. I took an image for you see the attachment?). See where the arrow is pointing? Tricky, I know. It took me forever to find the silly little thing, but you all know that technology is not my strong-suit! So glad to hear it isn’t just me! Enjoy! 🙂
OK.. It only took two middle age adults to do that. 3 if we count you. But it’s all worked out. hubby already had a amazon acct. so we down loaded it on to his laptop. I got it and I’m looking forward to reading it. Thank you for your help, and the screen capture, I would have never found that little avail for pc line… it was tiny. TY you for helping me get a copy. I probably won’t understand much of it.. until I read it a few times.. but there is something screwing going on with my eyes… gotta get that under control before it gets much worse. Thanks again, capri
Yes, capri, you are the only one left. But to help you, ;), you don’t have to have a Kindle to get this. There is a sneaky little line to click to get the booklet right on your PC. I took an image for you see the attachment?). See where the arrow is pointing? Tricky, I know. It took me forever to find the silly little thing, but you all know that technology is not my strong-suit! So glad to hear it isn’t just me! Enjoy! 🙂
I think I just lost a post. Basically it said, thanks for the screen capture, I got it now, it took a bit of rigmarole, but your extra instructions. Were very helpful. Thank you. I’m looking forward to reading it.
Hi Capri,
Were you at the meeting on Sunday? I would have liked to have met you. I was the one with the three kids that had to leave early because I was not feeling well. At least when you are in a room full of zebras they understand why you can’t tolerate sitting upright. I hope to make it to the next meeting. Hopefully I will be having a better day.
ShondaHi Lab Science Lady, I was at the past two meetings. the gal I rode with and I were late, last time, and unfortunately missed all of Dr. Diana’s presentation. So I didn’t get an book there. :-/ If you left early we probably crossed paths. I think I do recall some children. I had a peach colored “cool town” around my neck. Sandra was giving her talk when we got there. Bless your heart. So sorry to hear you needed to leave. Lord knows getting there is such a battle. We came from the Ft. Worth side of town. Traffic and construction. ick. Yes, Zebras understand one another very well. I was just thinking how sad it is that this illness makes us feel so vulnerable.. but it is nice at the meetings where other ppl know, if you faint, even though it’s no fun, you’re prob going to be OK. Hope to see you at the next Dallas Mtg. Hopefully we will all be having a good day. The closer to fall we get the better for me. Heat is one of my many triggers.
At least no one fainted this time! 🙂 Of course we all understand… My sweet daughter took it upon herself to bring cooling cloths if anyone needed them! I saw someone wearing one around her neck! Smart lady! It also reminded me that when we meet again, we should also put our user names on our name tags! 😉
That was me. It was just too hot outside. I love my cooling towel. I hope to get a another one before they quit selling them. I keep one I my car for emergencies, and now I realize I need one for at the house. It really served me well that day, or might have been the fainter. I was really dragging. It didn’t match my outfit, but, I knew most of the zebras would understand anyway.. lol.
At least no one fainted this time! 🙂 Of course we all understand… My sweet daughter took it upon herself to bring cooling cloths if anyone needed them! I saw someone wearing one around her neck! Smart lady! It also reminded me that when we meet again, we should also put our user names on our name tags! 😉
Hi Dr. Diana,
My husband did see a lady at the back faint. Her husband found her a chair just in time. I could have used a cooling cloth. It was so hot in there. That was adding to my nausea and pain. Where can I buy cooling cloths cheep? Is there a particular one that works best? Btw your daughter is a sweet, helpful, beautiful, young lady. I am sure you are a proud mama.
ShondaHi again, I can speak to the where to get a cooling towel part. And you really should try before they discontinue them for the season. I’m going to try to get another one. I get the impression they are designed for ppl who work out in the sun.. close enough, right?..
I’ve heard they are avail at Bed. Bath & Beyond, At Walgreens, (where I got mine,) and at Lowes Home Improvement, I heard advertised on TV once.. My son got a free one from his work and it’s smaller than mine. I’ve seen them priced at $3.99 and $9.99. The larger ones are $9.99… and worth it. they come in a plastic tube a bit smaller that the kind you use at drive though at the bank. you’ll love it. I was so nervous about “wasting the money” now I wish I had bought two.
At least no one fainted this time! 🙂 Of course we all understand… My sweet daughter took it upon herself to bring cooling cloths if anyone needed them! I saw someone wearing one around her neck! Smart lady! It also reminded me that when we meet again, we should also put our user names on our name tags! 😉
Hi Dr. Diana,
Where can I buy cooling cloths cheep? Is there a particular one that works best? Btw your daughter is a sweet, helpful, beautiful, young lady. I am sure you are a proud mama.
ShondaOh no! Someone fainted AGAIN?! Lots of cooling clothes — we have an assortment! Just go to Prettyill.com, and put “cooling clothes” in the search bar for Amazon. 😉
Thanks Capri and Dr. Diana. I will have to get several of the cooling towels. Capri I am going to be at the next meeting so I will see you then. I don’t remember seeing you, but I was focused on not passing out. It seemed very hot that day outside, and the building was hot too. I already was feeling bad though before the heat, but the heat makes everything worst. I could barely sit in church, then I went home and napped for an hour hoping I would then make it through the meeting. Unfortunately that did not help. I think I have all the signs of hydrocephalous and I think that was what was going on. Plus my pain levels that day were unbearable. Oh the joys of EDS.
ShondaHi Capri,
Were you at the meeting on Sunday? I would have liked to have met you. I was the one with the three kids that had to leave early because I was not feeling well. At least when you are in a room full of zebras they understand why you can’t tolerate sitting upright. I hope to make it to the next meeting. Hopefully I will be having a better day.
ShondaHi Lab Science Lady, I was at the past two meetings. the gal I rode with and I were late, last time, and unfortunately missed all of Dr. Diana’s presentation. So I didn’t get an book there. :-/ If you left early we probably crossed paths. I think I do recall some children. I had a peach colored “cool town” around my neck. Sandra was giving her talk when we got there. Bless your heart. So sorry to hear you needed to leave. Lord knows getting there is such a battle. We came from the Ft. Worth side of town. Traffic and construction. ick. Yes, Zebras understand one another very well. I was just thinking how sad it is that this illness makes us feel so vulnerable.. but it is nice at the meetings where other ppl know, if you faint, even though it’s no fun, you’re prob going to be OK. Hope to see you at the next Dallas Mtg. Hopefully we will all be having a good day. The closer to fall we get the better for me. Heat is one of my many triggers.
I do hate the construction on that side of town, and it has been going on more than a decade. I live over near the Lewisville/Plano/Carrollton area, and it took us almost a hour. I can only image how long it took you. I have trouble driving now. Do you? This disease takes everything from you. Did you ever find a doctor to diagnose you? I think I found a good one. I am still waiting to see how things turn out before I add them to the good doctor list.
Shonda
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